LOCAL AMBASSADORS: It’s not you, it’s the system – navigating the NHS

Words by Jo Bull

My name is Jo, and I dare to exist while disabled. I am under the mental health team and I’m diabetic. I have experience on both sides of the desk in public services.

I don’t think it’s news to anyone that the NHS system is broken. Even before Covid-19 there have been areas of lack in terms of understanding and awareness with chronic illness, sensory issues, trauma informed practice, and hidden disability.

I write this because I need reminding of the following on a daily basis when I am ill. Because the system conditions us to feel like we are a burden, we are often left to manage our own illness – or treated as if we know nothing about our own brains and bodies after a lifetime of living and working within them.

And we can frequently experience unsafe treatment, in terms of both attitude and medication when practitioners are making assumptions or not paying attention.

The system is now so fragmented, overloaded, and traumatised, half the workers within the NHS are in states of fight or flight – and as no one has supported them to self-care, patients and service users often bear the brunt of that.

Sometimes they literally do not have enough bodies to do their job. Sometimes they are not feeling safe and grounded enough in their own selves to listen, absorb information, or keep us safe.

Two overloaded traumatised people meeting in these circumstances often don’t do well together. This is dangerous and distressing for people without complex needs, and even harder for those of us who do not fit the norm. If the system no longer works for the typical and abled it is now a massive hurdle for those of us who aren’t.

We need to pause, breathe, and meet each other – medic and patient – as two humans navigating impossible waters together. We need to have empathy for each other, without compromising needs or safeguarding, and without blaming, shaming, or being dismissive. Negotiating and navigating together, as a team.

As service users, we can tell ourselves the following things: they may not be able to meet our needs, they may not have empathy for us, they may not understand. This is not within our control. However, we do not have to accept or absorb arrogance, ignorance, abuse, or stigma.

We are not to blame for the gaps or lack within the system we keep falling through. The system’s lack is not the user’s fault; we do not need to hate ourselves. We are not a burden.

What we can have control over is how we view ourselves, and learning more about ourselves so we can continue to identify and ask for what we need.

Jo is part of the LOCAL AMBASADORS project, using community journalism to give local people a louder voice – including adults living with disabilities. For more stories from our LOCAL AMBASSADORS visit www.erdingtonlocal.com/category/la-news-features

If you would like to know more about the LOCAL AMBASSADORS project and join the team for free, fun, and friendly workshops on journalism and creative writing then email [email protected]

FEATURE: Erdington Community Volunteers, the silver lining of the coronavirus crisis – helping thousands across the constituency

Words & pics by Ed King / Video by Paul Withers – Erdington Local Broadcast Unit

There has not been much to celebrate over the past few weeks, as the world has been put on pause to stem the spread of COVID-19.

But the silver lining of the coronavirus crisis can be found in the volunteer groups that have sprung up all across the country – grassroots organisations who have mobilised friends, families, and neighbours to support the most vulnerable in their communities.

And as national campaigns such as Volunteers’ Week have been highlighting across the UK, this community spirit and endeavour is playing an increasingly vital role in our country’s social care network.

The Erdington Community Volunteers began as a Facebook group, an online act of goodwill set up by local resident Jo Bull – launching via social media on the day lockdown began.

Two months later and they now have over 800 online members, with an active team of over 70 local people helping the official Erdington COVID-19 Taskforce deliver important outreach campaigns. What started as a simple gesture has become a fundamental support network for thousands of Erdington residents.

There was a nationwide group of mutual aid groups at the time,” explains David Owen, who came onboard to help co-ordinate the Erdington Community Volunteers as their membership grew, “and a centralised group were asking for each community to create their own, in essence.

We had 500 members (online) in our first 24 hours and it’s grown consistently since then, so we’ve got just over 800 members now. We wanted a platform for people who wanted to help, to meet up with those that needed help.”

Working with the Erdinton COVID-19 Taskforce, the Erdington Community Volunteers have become the hands and feet of a significant outreach programme with organisations such as The Active Wellbeing Society, Witton Lodge Community AssociationCompass Support and The Pioneer Group 

There has been an immediate and constant programme distributing food and essential household items across the constituency, with around 20 Erdington Community Volunteers delivering daily care packages to those who have needed to self-isolate.

The coronavirus put people into lockdown who normally live completely independent lives,” explains David, “they weren’t used to dealing with established organisations.

“So, we filled that gap, if you like, between what are the statutory requirements and what are the requirements during COVID-19.

Some of the national programme were slow to respond, in all fairness, and we able to very very quickly identify people who needed help and get that help to them.”

But whilst playing an important role in the community, especially during the coronavirus crisis, the Erdington Community Volunteers has become a community within itself – as many members discover unexpected positives from the time and effort they have given to the group.

I found out about the group through my cousin, who started delivering a few weeks before I did, explains Dillon Linford, a young resident who has been helping the Erdington Community Volunteers distribute food and essential items with The Active Wellbeing Society.

It’s good. It’s a good way to break up the day and it gives you something to do during lockdown. I’ll have to fit it in between everything I’m doing, that’s restarting after lockdown, but I can definitely see myself doing more of it. It’s good for me; it’s good for other people. It’s good to help.”

But as Volunteer’s Week draws to a close, with the #NeverMoreNeeded and #BrumTogether campaigns hoping to continue the momentum of support, the Erdington Community Volunteers are also making plans for the future.

For many of the volunteers it has been an extremely positive experience,” continues David, “it’s given them an opportunity to help when there was a sense of helplessness.

They wanted to help, they wanted to help the community, but they didn’t know how. They didn’t know the established organisations that existed. This platform, this group, has given them that opportunity.

You see more affluent areas, such as Sutton Coldfield or Moseley, with a charitable trust – I’m not saying the (Erdington) Community Volunteers will become that, but with the networking that’s happened I’d like to see something like that established within Erdington – and to see that as our legacy.

If anyone wants to help, and we are still desperately looking for volunteers, please get in touch with us via Facebook or by emailing [email protected]

Erdington Community Volunteers

To visit the Erdington Community Volunteers Facebook group, where you ask for help and support during the coronavirus crisis – or offer your services as a volunteer, visit www.facebook.com/groups/625073991557017

Alternatively, you can email David Owen at the Erdington Community Volunteers group via [email protected]

A directory of all Erdington COVID-19 Taskforce organisations, offering help from employment advice to mental health support, can be found by visiting: www.erdingtonlocal.com/covid-19-local-support

Volunteers’ Week runs across the UK from 1st to 7th June – for more information, visit www.volunteersweek.org

FEATURE: “I don’t think I would have survived the lockdown without my volunteering,” – Erdington local woman’s cry for more community support

Words by Steve Sharma / Pics courtesy of Erdington Local Community Response

A local woman helping an Erdington community support group to deliver food and essential supplies, and safeguard elderly and vulnerable residents, says volunteering has saved her life.

Donna Tone said her experience working alongside Mutual Aid Group, Erdington Local Community Response, has helped her to survive the lockdown.

At the start of Volunteers Week (June 1-7) the primary school worker is now urging others to follow her example and reap the ‘amazing’ benefits it brings.

“Should people volunteer? Absolutely,” she said. “Because you are not only doing good for others but for yourself too. My self-esteem and confidence have increased massively since I started volunteering and I’ve made some amazing friends and met some lovely people.e 

“At the beginning of the lockdown I felt very isolated with my family living far away from me – but my volunteering has changed that. I now feel uplifted as a person. I don’t think I would have survived the lockdown without my volunteering – it saved me.” 

Donna, who has spent the last three months helping to pack and distribute food parcels from a base in Ladywood, points to the collective efforts and unity of those working to support those in need.

“It’s like your own little community,” she said.

“One minute you’ve got these strangers standing behind you, the next minute they’re becoming your friends. 

“You just start talking to people and form connections, everyone is there to help each other, they are invested in the collective effort. Everyone is united.” 

Erdington Local Community Response was founded by local woman Jo Bull. It has been delivering hundreds of food parcels every week to homes across the district and supporting people through befriending services and via social media with information and resources shared on its Facebook page.

David Owen, who co-ordinates activity for the group, said the support it has received has been ‘eye-watering’ but with certain lockdown measures now being eased and people returning to their day jobs, volunteers are needed to sustain the help that’s being delivered to people.

“The take up of volunteers in Erdington has been immense with over 70 people giving up their time to pack, shop and deliver for those in need,” he said.

“But as these people return to work, we need a new wave of volunteers to get us through the weeks and months ahead. 

“So, if anyone out there, who lives in the North Birmingham area, can spare some time to help our group over the coming weeks we’d really love to hear from them. Please email me at: [email protected]” 

Erdington Local Community Response is a member of the Erdington COVID19 Taskforce – a network of local community organisations and individuals working together to support the district’s vulnerable, isolated and at risk during the Coronavirus pandemic.

The Taskforce is facilitated by Witton Lodge Community Association. Chief Officer, Afzal Hussain, commented: “Volunteers are the lifeblood of organisations like ours and their efforts across the constituency in support of organisations like Erdington Local Community Response has been truly inspiring. 

“We have also benefited from their incredible and selfless work in getting food parcels packed and delivered to the most vulnerable members of our community during the lockdown.

“Without their support a lot of the work that has been achieved would not have been possible. We are all very grateful to every single one of our amazing volunteers.”

To visit the Erdington Local Community Response (to COVID-19) Facebook group, where you ask for help and support during the coronavirus crisis – or offer your services as a volunteer, visit www.facebook.com/groups/625073991557017

A directory of all Erdington COVID19 Taskforce organisations can be found by visiting: www.erdingtonlocal.com/covid-19-local-support

Volunteers’ Week runs across the UK from 1st to 7th June – for more information, visit www.volunteersweek.org

LOCAL PROFILE: Jo Bull – founder of the ‘Erdington local community response to COVID-19’ Facebook group

Words by Terri-Anne Fell / Pic courtesy of Jo Bull

Jo Bull has been living in Erdington for 13 years. Since she was a teenager, she has been creating handmade cards which she sells to raise money for Erdington’s YMCA. Itching to be a part of her community, Jo volunteers as a peer lead for mental health service users in the area, encouraging vulnerable people to create friendships and gain creative skills they wouldn’t normally have.

When the COVID-19 lockdown began, Jo realised very quickly that services she and many others turned to in their hour of need would have to close – so she took to Facebook to look for an online community she could be a part of, to help in any way she could.

Noticing other areas in Birmingham had created response groups, Jo created the Erdington Community Response to COVID-19 Facebook group. Since its inception last month, the group has amassed over 600 members. Currently, the group has supported over 400 households and has 63 active volunteers.

Jo’s role in the group is to provide online support to people who need somebody to talk to, and she signposts to services she knows can help vulnerable people.

Erdington Local is proud to recognise and celebrate Jo Bull – a fantastic member of our community and a well-deserved Erdington Local Hero.

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EL: What’s your relationship with Erdington, how long have you lived/worked in the area?
Jo: I’ve lived in Erdington for 13 years; I live on Watt road and it’s the longest I’ve stayed in one place.  I moved here in 2007, just after theological college, where my first job was working in Erdington Job Centre for the Department of Work & Pensions. I remember noticing when I started working at the Job centre that almost all of my colleagues didn’t live locally. They all thought it was strange that I did!

EL: If you could shout about something in Erdington so loud the whole of Birmingham could hear, what would it be?               
Jo: Eden Café. It’s my favourite.  They are fab. They’ve been open for about three years and are attached to the YMCA. It’s just a really nice place to visit and to be a part of. I always have a latte, and any day they have good cake is my favourite day! They are friendly and have quite a few regulars who like me have various issues and disabilities. They are good at getting to know their people and catering to all of our little quirks.

EL: In your spare time, you’ve been creating handmade cards. How long have you been doing this for?
Jo: I’ve been making cards since I was a teenager. I’m 42, so I started nearly 30 years ago as I got really frustrated with finding the perfect card in the shop. I’d open them and find they’d say things inside that had nothing to do with the person I was sending it to! I thought because I can’t find what I want, I’d just do it myself. They sell my cards in Eden Café, and the profits from sales go to the YMCA.

EL: Whilst the UK is in lockdown, you’ve set up the Erdington Local Community Response to COVID-19 Facebook Group, what made you want to set up the group?
Jo: As the UK went in to lockdown I realised everything I was a part of in the community would be stopped, which made me feel absolutely devastated and lost. I thought to myself that people in Birmingham are going to need a way to talk to each other, people were setting up local COVID-19 groups and someone asked me if there was one in Erdington. There wasn’t, so I made one.

EL: Did you anticipate the group would gain the traction it has?
Jo: I wasn’t expecting people to join. To start off with I just added people I knew from the day centre and gave the link to a few people who were asking for it. For the first two days I was the only one posting anything; I was a little bit gutted so I went away for a few hours and when I came back to the group there were 30 people wanting to join, it was like the cavalry coming in. I didn’t know who they were, and they didn’t know me, we all just wanted to help.

EL: How have you managed to keep the support consistent as the group has grown?
Jo: As the group was growing, I realised I couldn’t be the only admin. I didn’t know if my mental health would hold out and if I got sick I didn’t want to leave people on their own in the group. I don’t know what I’d do if I didn’t have all the other admins.

EL: In the group you’ve said you mostly provide online support for people who may be struggling with their mental health, why did you decide to take on this role?
Jo: At the day centre, I volunteer as a peer lead for mental health service users. So, I worked out with the other admins that it was OK for anyone to chat with me if they needed an emotional offload.  You never know who you are coming in to contact with when on deliveries and you may meet really vulnerable people and not know what to do.

I’ve spoken to people who have been really suffering whilst in lockdown, and people have come to the group saying they don’t know whether they’ll be able to get through this. I’ve found I’m able to signpost people to organisations that will be able to help them easily and I’m great at being able to motivate people.

EL: Speaking of motivating people, you’ve been using your handmade cards to spread joy to volunteers in the group. One of our writers received a card and it was so lovely!
Jo: I seem to be chief card maker for the group,  I’ve already given cards to people who have helped me personally during lockdown, but David (Owen) had the idea of sending every volunteer a thank you card and I did 23 cards – one for every active volunteer at the time.  I thought my hand was going to fall off, I wrote a proper message in all of them. They are all working hard and they deserved a handwritten personalised thank you.

EL: As the person who created the Erdington COVID-19 Community Response group, do you think other organisations in the area are doing enough to help the fight against coronavirus?
Jo: I think it is phenomenal that people are able to do anything; however much we do I think there will always be something that still needs to be done, we can’t fix everything. I would say, are we all going to bed having done what we can today?

If we focus on what we are doing and what we have done, rather than what can be done, then we are likely to help more people. We do what we can, and not what we can’t. As long as I know people are getting help, I’m happy.

To visit the Erdington local community response to COVID-19 Facebook group, where you ask for help and support during the coronavirus crisis – or offer your services as a volunteer, visit www.facebook.com/groups/625073991557017

Alternatively, you can get in touch with Erdington Local via phone or email and we will forward your details to the Erdington local community response to COVID-19 Facebook group.

For all our contact information, visit www.erdingtonlocal.com/contact-erdington-local

FEATURE: Rugby dad tackles COVID-19 lockdown – Erdington Rugby Club player and patron, David Owen, is ready to ‘ruck’ n roll with community response to coronavirus

Words by Keat Moore / Pics courtesy of David Owen

Erdington local, David Owen, has been a star player when it comes to community response to the COVID-19 lockdown – which has left many residents housebound and anxious about how they’re going to access food and supplies.

David (37), who works as a Data Analyst for National Express, leapt into action after seeing a post on Facebook calling for volunteers – as part of the ‘Erdington local community response to COVID19’ group set up by another Erdington resident, Jo Bull.

The Facebook group currently has over 600 members and has become a de facto hub for those seeking or offering support to the Erdington community during the coronavirus crisis. And thanks to the efforts of David and Jo, as well as their team of nearly 60 active volunteers, they’ve already helped over 200 people.

Erdington Local contacted David to find out more about the man nicknamed ‘Mr. Erdington’, and how he’s getting on.

“I feel like a kid with his finger in the dam, to be honest,” admits David, “but we’re doing well, and our volunteers are doing an amazing job”. Given the uncertainty around how long the coronavirus lockdown could last, let alone the pandemic, it’s not surprising he feels apprehensive.

At the time of writing, the Erdington local community response to COVID19 Facebook group has 57 volunteers – all members of the community who just want to help. Each evening, David posts an update to the group and gives special thanks to his ‘Angels of the Day’; whether it’s collecting hundreds of sandwiches or delivering a single bottle of Calpol, these volunteers are going that extra mile to perform small miracles of community-spirit when people need each other the most.

David also has fronted £200 of his own money to ensure everyone, even those who can’t afford much, don’t go without. “I’m not too concerned about the money at the moment,” tells David, “we can sort that out after, but right now people need food and that’s more important” – although he wishes he had more money to cover all of the volunteer’s expenses, even though they haven’t asked for any compensation.

All of the volunteers pay for the groceries out of their own pockets and give the receipts to David so he can transfer the money back to their bank accounts, a system that also works as a deterrent for those who would try to take advantage.

“We’ve had a few chancers, but not many. And once they know I’ll be checking their details and that everything we do is cashless, they don’t respond, ” David takes safeguarding seriously after reports from other parts of the city that vulnerable people have been defrauded by those pretending to be volunteers. “I know a lot of people in the area already, and you get a feel for who the dodgy ones are. But honestly, we haven’t had to deal with anything like that,” and whilst he doesn’t have the means to perform DBS checks, David does the best he can to ensure the group’s volunteers are who they say they are by verifying their addresses and identities via the electoral roll.

David and his volunteers are even happy to make shopping trips multiple times a week for the same individual, if needed. “I do have to tell people that we’re not going to do a weekly shop,” explains David, “they have to limit it to three days’ worth of supplies, and not £90 weekly shops, otherwise we wouldn’t be able to carry on.”

The Active Wellbeing Society, who have been appointed by Birmingham City Council to help coordinate and distribute food supplies across the city, are also supporting David and his efforts – which he says has helped manage the increasing demand and need from the community: “TAWS have been brilliant, they have loads of food from across the city and they’ve got people prepping and packing hot meals and we deliver them.”

“I’ve always been rubbish at being idle,” David responds when asked what inspired him to get involved, “and I’m a big believer in community spirit, especially in Erdington.” He’s no stranger to rallying for a cause either, having campaigned and fundraised for the Erdington Rugby Club. It was brought back from extinction through David’s efforts and the generosity of the local community, going from strength to strength, even replacing the changing rooms with a donated double-decker bus (nicknamed Rugger) kitted out with showers.

But the biggest surprise for David has been discovering how many organisations work in Erdington to support the community, “I’ve never really been exposed to these kinds of organisations because I’m all about the rugby club, but it’s really reassuring to know that they’re out there trying to make a difference.”

He’s also been touched by how quickly he and the other volunteers have built relationships with the people they support, “it’s lovely, we’ll call ahead to let them know we’re on the way with their shopping so they can pick it up from the doorstep, and when we get there they’ll be in the window with a big grin, giving us all a wave.”

David’s also got big plans for when the lockdown is over, “I’m going to throw a big party for all of the volunteers and for everyone we’ve supported. All of us have made friends that we didn’t have before, and I want to celebrate that and the community-spirt that I always knew Erdington had. I don’t want us to go back to being strangers.”

To visit the Erdington local community response to COVID19 Facebook group, where you ask for help and support during the coronavirus crisis – or offer your services as a volunteer, visit www.facebook.com/groups/625073991557017

Alternatively, you can get in touch with Erdington Local via phone or email and we will forward on your details to David Owen and the the Erdington local community response to COVID-19 Facebook group.

For all our contact information, visit www.erdingtonlocal.com/contact-erdington-local/