NEWS: Dying Castle Vale schoolgirl’s EuroDisney wish sparks massive community fundraising effort

Words by Adam Smith / Pics supplied by Keena Cespedes

A dying Castle Vale schoolgirl’s wish to see EuroDisney is a step closer after £4,600 was raised in a month by big-hearted friends, family, and the community.

Six-year-old Kionne Holding, who has an incurable rare form of epilepsy, wants to go meet the Little Mermaid with the rest of her family – but due the specialist disability travel arrangements the holiday could cost £10,000.

However, when her mother Keena Cespedes, who has been at her daughter’s side for the last 93 days at Birmingham Children’s Hospital, launched a GoFundMe page (Kionne’s Fund) in August there was an overwhelming response.

Click here or on the hyperlink above to visit the GoFundMe page – Kionne’s Fund

Kionne’s Fund has inspired online music festival fundraisers, reggae brunches, and raffles. Family friend Lee Crofts is also undertaking a sponsored ‘Castle Vale to Paris Triathlon’ which has so far raised £1,600.

Keena, aged 37, told Erdington Local: “I can’t even begin to say how amazing people have been since I told people about Kionne, friends, family, and strangers have sent me messages of support and my daughter presents.

I put up the GoFundMe page without thinking anything would happen, I would have been happy with £50 but it feels like the whole of Castle Vale has got involved, as well as people across Birmingham.

We have now raised more than £4,600. I know times are hard for people, so it really means a lot people are donating.”

Keena remembers Kionne as a bubbly, funny, lovable child before last November when she suddenly began having seizures and headaches. Two months later she was diagnosed with small tumor on her brain and a rare form of epilepsy called Lennox Gasture Syndrome.

Her condition deteriorated and she in the last nine months she’s lost the ability to walk, talk and eat. Doctors have given her various drugs, treatments, and alternative remedies but all to no avail.

Keena said: “Due to all the drugs she is on she does not understand what is being done for her and all the love people have for her, but we still are hoping to take her to EuroDisney with her sisters.”

Tragically Keena has already had to have a conversation with specialists about Kionne’s end of life care.

She said: “This syndrome has taken everything away from her and is slowly killing my baby. She is unable to walk, eat for herself, and now her speech is going. She now speaks like a three-year-old not a six-year-old. She cannot be treated and there is no cure. I’m coming to terms with my baby dying and the little time we have left with her.

All I want to do now is make her life as amazing as possible and one way is to get her on holiday with her sisters who she loves so much.”

And due to the coronavirus pandemic, Kionne has been unable to get visits and cuddles from her three sisters.

Keena added: “Only I can go and visit her because of COVID-19, Kionne misses her sisters and they miss her but there is nothing that can be done about that – that is why it would be wonderful if we could all go away together. We would need specialist care when we are there and have to stay in adapted hotels, but it can be done and we are hoping to go early next year now.”

Castle Vale fundraiser Lee Crofts has now cycled the distance from “The Ressies to Dover” and also organised a reggae brunch at Minworth Social Club.

He said: “We’ve had amazing gestures of support with events, raffles set up, prize donations, and raised £500 in a day.

The little superhero is fighting the hardest fight of all, so let’s make the dark days a little brighter and give her. Her wish of a holiday with her sisters to make some priceless memories.”

To sponsor Lee as he continues his bid to cycle, run and walk the distance to Paris, click here to visit the Kionne’s Wish PayPal page.

The Chivenor Primary School pupil has touched the hearts of the nurses at Birmingham Children’s Hospital, where she has been for the last three months.

Nurse Victoria Mulligan posted on the GoFundMe page: ‘I have had the pleasure of looking after Kionne and every shift she brightened my day with a massive smile and huge hug.

‘She holds on to you so that you can’t leave her side, she sings to you, she makes you laugh, she is super brave and absolutely deserves to go on holiday which will never make up for all she has gone through but will give her and her family an experience of happiness to remember forever.’

For more information or to donate to Kionne’s Fund visit: www.gofundme.com/f/kionnes-fund

To sponsor Lee Crofts – as he cycles, runs and walks the distance to Paris – visit the Kionne’s Wish PayPal page here: www.tiny.cc/qpaysz   

NEWS: Castle Vale school uniform clothing bank helps hundreds of families facing the new academic year

Words by Rachael Brazier / Pics by Laura Grigg & The Pioneer Group

A staggering 276 families have been spared the cost of school uniforms, thanks to an initiative set up by Compass Support‘s Parent Champions in Castle Vale.

The school uniform clothing bank was opened at The Sanctuary on Tangmere Drive in mid-July, collecting and distributing second-hand items before the start of the new academic year. All services and items are free of charge.

Molly Miles, Volunteer Coordinator from Compass Support – the charitable arm of The Pioneer Group, who works with Parent Champions in Castle Vale, says:

I am so proud of Jodi (Dunstan), Jayne (Herbert), Jess (Llewellyn) and Lisa (Pountney) who are helping children and families far and wide. Hopefully, we’ll be able to continue to support children and families with essential school uniforms in 2021.

The project was planned back in February and was on hold till early July when lockdown eased. It’s a brilliant initiative in terms of both saving money for struggling families, especially those with multiple children, and for sustainability reasons as much of the uniform is in perfectly good condition.”

To help raise awareness of the project and let people know where they can donate unwanted school uniforms, the Parent Champions have set up a Facebook page and are planning to distribute leaflets about their service.

Via the popular social media platform, local families can directly ask for specific uniform requests – which can then be collected by appointment from The Sanctuary community centre in Castle Vale.

Once uniforms and school items have been donated at The Sanctuary they are put into ‘quarantine’, washed, dried, and ironed ready for their new owner. When picking up items, parents and carers will be met by a volunteer – all socially distanced and abiding by government regulations.

Uniforms are available for local schools, including: Chivenor, St Gerards, Topcliffe, Pegasus, and Greenwood Academy. However, families affected by the coronavirus pandemic are donating and collecting from further afield – for example Smith’s Wood Academy in Solihull – as some uniforms come as standard issue.

Boys trousers have been the most donated item, as many teenagers grow out of clothes quickly. Another popular item on the wish list are PE kits – including t-shirts, pumps, and shorts.

And whilst the cost of school uniforms can run into hundreds of pounds per pupil, the Parent Champions initiative aims to reduce some of that financial burden for local residents. 

Jodi Dunstan, one of Compass Support‘s Parent Champions, helps local families with a range of information and advice about activities and services in the local area – alongside the school uniform initiative.

As a result of her hard work at the uniform clothing bank, especially with the added fears and pressures around COVID-19, Jodi Dunstan was nominated for and won a local Facebook competition celebrating community endeavours.

Jodi says: “We are receiving requests from people of all different backgrounds, and we’re so happy to give back to the community. We had one family that needed to kit out a family of seven children – can you imagine the cost?”

We’ll carry on as long as we can as we understand the hardships many families are currently facing. Between us volunteers we have 13 school-aged children of our own. We love being able to help, and just the relief on the parents/carers faces and the joy that uniform that fits brings is phenomenal.”

Any donated items that are not suitable for use are being sent for ‘ragging’ – with any funds generated ploughed back into running the uniform clothing bank initiative.

To find out more about Compass Support’s Parent Champions uniform clothing bank, including information on donating or collecting uniforms, please call (0121) 748 8111

You can also ask to join the private Facebook group, click here or on the hyperlinks in this article.

For more on Compass Support – the charitable arm of The Pioneer Group, visit www.compass-support.org.uk