NEWS: John Taylor Hospice helps make ‘special memories’ for Erdington bird of prey enthusiast

Words by Diane Parkes / Pics courtesy of John Taylor Hospice Erdington

John Taylor Hospice in Erdington gave a local family a precious day to remember thanks to a special visit from some feathery friends.

David Gilchrist and his family saw their Erdington garden turned into a bird show when Andy Plant of The Falconry Centre in Hagley brought along a few feathered friends.

It was a dream come true for 65-year-old David when he came face to face with a host of birds of prey including a bald eagle, two owls, an American kestrel, and a peregrine falcon.

David, who has the respiratory condition chronic obstructive pulmonary disease (COPD), has been supported by teams from John Taylor Hospice for two years.

As his condition has progressed, care has been stepped up to meet his needs – including creating special memories.

David’s family had organised a short holiday including a visit to a falconry centre for the life-long bird of prey enthusiast but faced disappointment when David became too poorly to make the trip.

But the team at John Taylor Hospice stepped in to arrange the visit from Andy along with a buffet so that other family members could share this special moment and enjoy the treat.

The event was made possible because David is part of the Personal Health Budget (PHB) project – a scheme in which patients are given control over how they choose to spend health and social care finance.

The scheme has been pioneered in Birmingham by John Taylor Hospice, Birmingham and Solihull Clinical Commissioning Group, and Birmingham Voluntary Service Council, working in partnership with Birmingham City Council (via the Better Care Fund). PHBs can be used to fund different services including home care, gardening or laundry and making special memories such as the Falconry event.

David’s daughter, 40-year-old Gemma Grantham, said the personalised care has made all the difference.

I can’t say enough about how much the hospice has helped Dad,” she says. “He was diagnosed nine years ago and we’ve been living with that ever since.

We were put in touch with the hospice two years ago and it has been such a help.

They explained the personal health budget to us and that has meant we’ve been able to access so much extra help. We have been able to have day sits and night visits which have really helped and the people who come can’t do enough for Dad. We’ve seen a real improvement in Dad’s mental health through getting this support.

The last few months have been really difficult as Dad had to go into hospital twice and both times we said goodbye to him – but both times he’s come back to us.

The first time he was having real breathing problems and the second time he had fallen and had to have a hip operation. With COVID-19 we were really worried about him going into hospital but he’s managed well both times.”

And the icing on the cake was the special visit from The Falconry Centre. Prior to the most recent Birmingham lockdown regulations, David was joined in the garden by his family including his three children, Gemma, Andrew and Rachel, and his nine grandchildren to see the birds.

We were all so disappointed when we realised Dad was too poorly to go on holiday,” said Gemma. “So this has been a real treat – not just for Dad but for everyone.

I still can’t believe the hospice has been able to do all of this for Dad. He’s really enjoyed it and I can see what a difference it’s made.”

John Taylor Hospice PHB Project Lead, Jan Hipkiss, said: “It was a real privilege to help David achieve his dream of seeing, once again, the birds of prey he so dearly loves and making this wonderful day come true for him and his family.

Through the personal health budget project we have been able to provide individual care, support and special memories for many patients and their families. This new way of delivering healthcare is ensuring it is the patient who is at the heart of their own decision-making.”

For more about John Taylor Hospice and Personal Health Budgets see www.johntaylorhospice.org.uk

NEWS: Hope and Healing at John Taylor, Erdington based hospice launches fundraising appeal to support grieving youngsters

Words by Diane Parkes / Pics courtesy of John Taylor Hospice Erdington

John Taylor Hospice in Erdington has launched the Hope and Healing Appeal – fundraising to support children across the West Midlands, who have lost loved ones during the coronavirus crisis.

The Hope and Healing Appeal aims to raise £10,000 to fund children’s counselling and art therapy groups at John Taylor Hospice – helping youngsters through one of the potentially toughest and loneliest times in their lives.

Donations to the Hope and Healing Appeal can be made online through a special Just Giving page, for more information visit www.justgiving.com/campaign/hopeandhealing

For those without access to the Internet, donations can also be made by texting the word ‘HEAL’ to 70331 for a £3 donation, or to 70191 for a £10 donation.

John Taylor Hospice is a charity, relying on public donations and fundraising to generate the £15,000 per day needed to run all its palliative and end of life care services. Founded in 1910, John Taylor Hospice is the oldest non-denominational hospice in the country – supporting over 600 individuals and families across the West Midlands.

The coronavirus pandemic has had a devastating impact on so many families and they will need support to heal from the grief this crisis has caused,” says Katie Mitchell, Head of Fundraising at John Taylor Hospice. “Your donation will mean so much to families and will support children to find the strength and confidence to open up, express their feelings and realise they are not alone.”

Fronting the fundraising appeal is Vicki Brennan, 50, from Kingstanding whose eight-year-old grandson Cruz took part in a pilot support group for children at John Taylor Hospice.

My beautiful daughter Siobhan was only 25 when she died of cervical cancer in June last year,” explained Vicki, who is now Cruz’s guardian. “When his mommy died he was so brave but he found it very difficult to talk about his feelings.

“The hospice nurses that cared for Siobhan told us about a new bereavement support group at John Taylor. Cruz looked forward to going every week as he felt reassured talking to other children who’d lost parents and grandparents and realised he wasn’t alone.

In art therapy groups he drew pictures of his mommy – such lovely, happy memories of the two of them shopping and playing together. After a few weeks of counselling and art therapy with the other children, we noticed that Cruz started to open up more, being able to express his emotions and ask more questions.

“The group has also given us strength as a family, the opportunity to grieve in our own ways and to reminisce about precious moments together that keep Siobhan’s beautiful memory alive.”

The support sessions that Cruz attended were a pilot for the Birmingham-based hospice – and now the Hope and Healing Appeal aims to raise funds so this vital service can be continued and offer a lifeline for more families like Vicki’s.

Vicki added: “For children especially, the loss of someone close can be overwhelming. But with the right support, children can find the strength to cope with feelings of sadness, guilt, insecurity and fear. If you are able to support this appeal we’d be incredibly grateful and your kind donation will help more children like Cruz to heal from their grief and have hope for happier times.”

John Taylor Hospice’s Hope and Healing Appeal

To make a donation to the Hope and Healing Appeal visit www.justgiving.com/campaign/hopeandhealing or text HEAL to 70331 to donate £3, or HEAL to 70191 to make a £10 donation.

To read more about John Taylor Hospice visit www.johntaylorhospice.org.uk

FEATURE: Coronavirus in Erdington’s care homes

Words & original photography by Ed King / Pic of Jean & Charles Beattie courtesy of Sarah Yates

As cases of coronavirus continue to skyrocket, the number of care home residents contracting COVID-19 heads towards an equally dark horizon.

At the time of writing, the latest government figures show 133,495 reported cases across the UK – resulting in over 18,000 deaths.

But with nearly 2,000 of those registered to residents of care homes, more than doubling over the Easter weekend, by the time you read this the number will be even higher.

In a recent survey conducted by Jack Dromey MP, there were ‘19 cases of Coronavirus in Erdington Care Homes, either confirmed or suspected’ – with six residents having died either in their facility or after being moved to hospital, with another 11 cases waiting for confirmation on cause of death.

Alongside the increasing strain on supply chains crucial to the healthcare sector, such as manufactures of Personal Protective Equipment (PPE), it’s arguably a case of when and not if. The only question left, is how much worse will the impact of coronavirus be for care homes and their residents?

He went in a week ago today,” tells Jean Beattie, whose husband, Charles, is currently in Heartlands Hospital being treated for coronavirus. “First of all, he went onto the pre-COVID ward, where they asses them. Then, once the test came back positive, they moved him to the COVID ward, and he’s been there the rest of the time.”

A resident of The Ridings Care Home in Castle Vale, Charles Beattie has underlying dementia and was referred to Heartlands after suffering a fall whilst getting out of a reclining chair. “Because his oxygen saturation levels were so low, which makes him dizzy and wobbly on his legs, he over balanced,” explains Jean, “and hit his head on the chest of draws.”

I think the paramedics forwarded the information (to the hospital) that there was COVID on the unit, so he automatically went to the pre-COVID ward. But he wasn’t admitted because of his general health.”

But treating the physical symptoms is only half the battle for some patients, and Jean also has concerns around her husband’s dementia.  

He’s on a high dependency unit within the care home… they know him, and he knows them. They are his security blanket. In fact, he relates more to them now than he does to us, his family. Because he’s with them 24/7… It’s the people that are looking after him all the time that are his immediate family now.”

Home is where the heart is, or where the mind can find peace. But what protection do both staff and residents have if that happens to be a care home facility?

They’d got nothing,” tells Jean – who explains the required PPE only reached The Ridings over Easter, “just the ordinary paper masks. And they’ve got COVID positive patients in there at the time; and had lost some of them as well.”

All they’d got were their plastic aprons, the gloves that they always have, and the paper masks that everybody has in a care environment – be it a hospital or whatever.”

Quick to support the staff at The Ridings, who Jean believes “should be paid in gold bars not pence,” the adversity health practitioners face during the coronavirus crisis should also highlight their worth.

It’s really important that they are pulled into the equation,” tells Jean, “they’re really have been forgotten. I understand why all the concentration, in the first instance, was on getting care and service into the frontline of the NHS. But they (Government) should have realised that this was a bombshell waiting to explode.”

I’m full of admiration and I’m very, very grateful for everything they’ve done in Heartlands (Hospital). But he needs to be with his family. Which is the home. Once he’s there, no matter what the outcome, I will feel happier.”

Away from the fierce debate over PPE, there is another supply chain crucial to the health care industry – a cookie jar the general public have their fingers stuck in too. Food.

The most difficult thing we’ve had to deal with is the food chain,” explains Anglea – an administrator at Cedar Lodge Nursing Home on Kingsbury Road.

We’ve used online shopping for many years, because as it gives the residents more variety. I’ve got Asda’s website in front on me now; the slots only go up to 7th May and every single one is sold out. Every one from 6am to 11pm is sold out.”

Going direct to the supermarket shelves can be tricky too, as care homes are currently not exempt from the store by store rationing. “We take a letter to prove that we were purchasing for a care home,” explains Angela, “but one local supermarket wouldn’t let me buy three bags of porridge – even though I was buying for a care home.”

The day before I’d been at Spar in Wylde Green, they were wonderful. Sainsbury’s at Castle Vale, they didn’t restrict us either – I said to the person going shopping, make sure you’ve got your letter with you. But he went in and nobody stopped him. So, we were able to get what we needed.”

For most of us, bare shelves and item restrictions are a frustration. But when you’re cooking over 100 meals a day, it threatens lives. Not to mention the mental stress put on already vulnerable residents.

They can’t have any family come and visit,” tells Angela, “the regular entertainers and exercise classes… we’re not able to have those people come in anymore.”

If they were to have restrictions on their food or diet… to be honest I can’t imagine what sort of impact that would have on them.”

Sadly, concerns over both PPE and food in care homes are not uncommon. The recent survey conducted by Jack Dromey MP, contacting all 47 care homes across the Erdington constituency, identified ‘9 care homes (that) have indicated that food supply is an issue,’ raising concerns about ‘both item limits and lack of availability for online deliveries’.

Then there’s the issue of PPE, which most people at the end of an Internet connection will know is a widespread concern across the country.

In Erdington, 48% of the 47 care homes still have worries over accessing the right protective equipment – whilst ‘one care home has only received 600 masks since the start of the crisis, with staff now having to re-use masks due to a shortage.’

But, in Erdington at least, there is a plan to help care homes ‘secure adequate amounts of food needed to feed their residents.’ In a letter to Tesco’s CEO, David Lewis, Jack Dromey has asked for two clear changes in operational policy:

  • Exempt care homes from the item restriction limit that is in place for regular shoppers
  • Create special online delivery slots to enable care homes to access online deliveries – preventing their staff from making unnecessary trips to the supermarket where they risk contracting COVID-19

The Government must urgently reassure care homes that they will not be forgotten during this crisis,” says Jack Dromey MP. “They deserve with the NHS full access to PPE. Care home workers, as well as NHS staff, are delivering vital care in extremely dangerous situations. They are both working in close proximity to the virus and therefore both deserve proper protection.”

That, and the ability to feed their residents; regular meals shouldn’t be too much to ask. Now is a time for community and kindness. And someone keeps telling us ‘every little helps.’

To find out more about the spread of coronavirus, from the Office for National Statistics, visit www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases

For the latest information from Public Heath England, visit www.gov.uk/government/organisations/public-health-england

To find out more about the work being done for Erdington by Jack Dromey MP, visit www.jackdromey.org

NEWS: Erdington’s John Taylor Hospice operates central support hub for regionwide palliative and end of life care

Words by Ed King / Pics courtesy of John Taylor Hospice Erdington

John Taylor Hospice, in Erdington, is housing a new centralised support hub for people across Birmingham and Solihull – helping deliver regionwide palliative and end of life care during the coronavirus crisis.

Comprised of approximately 40 specialists from John Taylor Hospice, Birmingham St Mary’s Hospice, and the Marie Curie Hospice, the central hub has a rotating team of support staff available by phone 24 hours a day, seven days a week.

Named Hospices of Birmingham and Solihull (HoBS), the hub operates a live telephone bank and email service where people can reach a team of specialist nurses at any point, day or night – alongside palliative care consultants, healthcare assistants, social workers, occupational therapists, physiotherapists, and administrators.

Working with other healthcare providers across Birmingham and Solihull, the HoBS team are on hand for patients or family members who need advice, community support, or admittance to one of the three hospices’ Inpatient Units for round-the-clock care.

The HoBS team will then ensure, depending on individual needs, the required care can be provided – either at people’s homes or at the hospices themselves, providing a range of care options in line with guidelines from Public Heath England.

As huge demand is put on all NHS services due to the coronavirus pandemic, Hospices of Birmingham and Solihull is a collaborative approach to palliative and end of life care – with health care providers across the region pooling their resources to provide support for those facing life threatening and terminal illnesses.

With regular updates and specialist information coming directly from the Birmingham and Solihull Clinical Commissioning Group, staff at the HoBS hub are working from the most up to date medical advice and guidence – further supporting patients and families across the region, as hospitals and hospices are self-isolating to help stop the spread of COVID-19.

Across Birmingham and Solihull we have hundreds of specialist hospice staff who will be on call for people, both day and night,” explains Rachel O’Connor, Assistant Chief Executive of Birmingham and Solihull Sustainability and Transformation Partnership. “Our three adult hospices have seen the current need and acted rapidly to meet that. Working together we can provide the very best of expert care for people at the end of their lives.

Our aim is to ensure that individuals, their families and professionals receive joined-up and easy to navigate advice, support and access to care across from our dedicated and compassionate hospice teams when they need it the most.”

To reach the Hospices of Birmingham and Solihull helpline, available 24hrs a day and seven days a week, you can telephone (0121) 809 1900 or email hobs.referral@nhs.net

St Giles Hospice’s existing advice and referral centre will continue to operate, including its referral pathway – accessible by calling 0330 330 9410

For more on John Taylor Hospice in Erdington, visit www.johntaylorhospice.org.uk