NEWS: Dying Castle Vale schoolgirl’s EuroDisney wish sparks massive community fundraising effort

Words by Adam Smith / Pics supplied by Keena Cespedes

A dying Castle Vale schoolgirl’s wish to see EuroDisney is a step closer after £4,600 was raised in a month by big-hearted friends, family, and the community.

Six-year-old Kionne Holding, who has an incurable rare form of epilepsy, wants to go meet the Little Mermaid with the rest of her family – but due the specialist disability travel arrangements the holiday could cost £10,000.

However, when her mother Keena Cespedes, who has been at her daughter’s side for the last 93 days at Birmingham Children’s Hospital, launched a GoFundMe page (Kionne’s Fund) in August there was an overwhelming response.

Click here or on the hyperlink above to visit the GoFundMe page – Kionne’s Fund

Kionne’s Fund has inspired online music festival fundraisers, reggae brunches, and raffles. Family friend Lee Crofts is also undertaking a sponsored ‘Castle Vale to Paris Triathlon’ which has so far raised £1,600.

Keena, aged 37, told Erdington Local: “I can’t even begin to say how amazing people have been since I told people about Kionne, friends, family, and strangers have sent me messages of support and my daughter presents.

I put up the GoFundMe page without thinking anything would happen, I would have been happy with £50 but it feels like the whole of Castle Vale has got involved, as well as people across Birmingham.

We have now raised more than £4,600. I know times are hard for people, so it really means a lot people are donating.”

Keena remembers Kionne as a bubbly, funny, lovable child before last November when she suddenly began having seizures and headaches. Two months later she was diagnosed with small tumor on her brain and a rare form of epilepsy called Lennox Gasture Syndrome.

Her condition deteriorated and she in the last nine months she’s lost the ability to walk, talk and eat. Doctors have given her various drugs, treatments, and alternative remedies but all to no avail.

Keena said: “Due to all the drugs she is on she does not understand what is being done for her and all the love people have for her, but we still are hoping to take her to EuroDisney with her sisters.”

Tragically Keena has already had to have a conversation with specialists about Kionne’s end of life care.

She said: “This syndrome has taken everything away from her and is slowly killing my baby. She is unable to walk, eat for herself, and now her speech is going. She now speaks like a three-year-old not a six-year-old. She cannot be treated and there is no cure. I’m coming to terms with my baby dying and the little time we have left with her.

All I want to do now is make her life as amazing as possible and one way is to get her on holiday with her sisters who she loves so much.”

And due to the coronavirus pandemic, Kionne has been unable to get visits and cuddles from her three sisters.

Keena added: “Only I can go and visit her because of COVID-19, Kionne misses her sisters and they miss her but there is nothing that can be done about that – that is why it would be wonderful if we could all go away together. We would need specialist care when we are there and have to stay in adapted hotels, but it can be done and we are hoping to go early next year now.”

Castle Vale fundraiser Lee Crofts has now cycled the distance from “The Ressies to Dover” and also organised a reggae brunch at Minworth Social Club.

He said: “We’ve had amazing gestures of support with events, raffles set up, prize donations, and raised £500 in a day.

The little superhero is fighting the hardest fight of all, so let’s make the dark days a little brighter and give her. Her wish of a holiday with her sisters to make some priceless memories.”

To sponsor Lee as he continues his bid to cycle, run and walk the distance to Paris, click here to visit the Kionne’s Wish PayPal page.

The Chivenor Primary School pupil has touched the hearts of the nurses at Birmingham Children’s Hospital, where she has been for the last three months.

Nurse Victoria Mulligan posted on the GoFundMe page: ‘I have had the pleasure of looking after Kionne and every shift she brightened my day with a massive smile and huge hug.

‘She holds on to you so that you can’t leave her side, she sings to you, she makes you laugh, she is super brave and absolutely deserves to go on holiday which will never make up for all she has gone through but will give her and her family an experience of happiness to remember forever.’

For more information or to donate to Kionne’s Fund visit: www.gofundme.com/f/kionnes-fund

To sponsor Lee Crofts – as he cycles, runs and walks the distance to Paris – visit the Kionne’s Wish PayPal page here: www.tiny.cc/qpaysz   

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NEWS: Erdington United – local football heading for the big leagues

Words by Adam Smith / Pics courtesy of Erdington United

Erdington United could be a semi-professional club playing in its own stadium and hosting FA Cup ties within 15 years, under ambitious plans unveiled by its chairman this week.

The club is hoping to create a shining beacon of non-league football in a desolate North Birmingham for semi-professional teams.

Unlike the Black Country, which has a host of non-league football clubs including Stourbridge Town, Halesowen Town, Lye Town, and Sporting Khalsa – Birmingham is chronically underrepresented in the footballing pyramid.

However, chairman of Erdington United – Luke Caulfield – told Erdington Local everyone at the club is determined to put Erdington on the footballing map.

He said: “North Birmingham is crying out for a decent non-league team to get behind and we believe Erdington has got the community to create a thriving football club.

And we have recently found out that we have the history because there was an Erdington United which played from the 1950s until the 1980s.

We formed in 2014, then had a break but came back stronger last season and we have got our place in the Festival League for next season.”

The 30-year-old added: “I told our annual general meeting last week that in 15 years I want Erdington United to be playing semi-professional football on a Saturday, which would mean we would qualify for the FA Cup.”

There is a site on Spring Lane that would be perfect for a clubhouse and our long term plan has to be to have a stadium of our own, I know it will take years and years for this to be a reality but it is something we can all work towards.”

The club is currently finalising where they will be playing next season but one thing is for sure, after each game the team will all be heading to The Kingstanding Inn, Warren Farm Road.

Luke said: “We are really fostering a family feel for the club and the owners at the Kingstanding Inn, near where we played by last season, really looked after us, they put a spread of food on every week and it’s great to all get together after a game.”

Last season, using a squad of local players mostly under 25-years-old, the team qualified for a cup final but their day in the sun was cancelled due to the COVID-19 pandemic.

However, due to an innovative and relentless social media strategy Erdington United used the lockdown to increase the profile of the club.

Two Facebook posts about limited edition specially designed kids, Support the NHS and Black Lives Matter, went viral leading to orders from across the country for the strips.

Luke said: “As soon as one batch of kits are delivered they are sold out, people liked our Support the NHS kits but the demand for Black Lives Matter strip has been insane.

We have had orders from Newcastle, Leeds, London, Rugeley and random other places. I spoke to our manager about a Black Lives Matter kit and he was up for it, we have a mixed squad of players and growing up in Erdington I’ve obviously got black friends and family members so we wanted to make a statement.

We asked GB Kits if they could make them for us and they cannot make them quick enough because of the demand. It has been a brilliant way of introducing people to Erdington United.”

Whereas Aston Villa, West Bromwich Albion and Birmingham City’s social media accounts all attracted racist and abusive comments under Black Lives Matter posts – Erdington United fans on Facebook were totally positive.

Luke, who went to Edmund Campion School, added: “We want to reflect Erdington as a club so obviously I was really proud how everyone reacted to our Black Lives Matter posts.”

To follow Erdington United on Twitter, visit www.twitter.com/ErdingtonU

To find Erdington United on Facebook, visit www.facebook.com/erdington.utd.7

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NEWS: Erdington family embark on 5K sponsored walk to help save Twycross Zoo

Words & pics by Ed King

As zoos and safari parks across the country reopen from 15th June, when the Government eases the lockdown restrictions for selected businesses and tourist attractions, one Erdington family is busy fundraising to help save Twycross Zoo.

A special place,” for the Campion Garden residents, Ollie (9) and Rosie (5) Kinsella are embarking on a 5k sponsored walk around Pype Hayes Park – hoping to raise £500, dressed head to toe as their favourite animals, by Saturday 27th June.

To know more about Ollie and Rosie’s sponsored walk to help save Twycross Zoo, or to make a donation, visit www.totalgiving.co.uk/mypage/ollieandrosietosavethezoo

I went there for my first ever birthday,” tells Ollie – as he practices hiding like a Zebra, in his black and white camouflage costume, behind the sofa.

My favourite animals are penguins, because… they swim. And I like swimming under water. But there are no penguins at Twycross Zoo, so I’m a zebra… they’re my favourite because they’re stripy and they run fast. I can already run fast.”

Rosie has opted to be a flamingo, because she is an expert at standing on one leg and “flamingos are my favourite because they are pink.”

But the Erdington family of four are worried that the prolonged lockdown could put the UK’s zoos and safari parks at serious risk, seeing them as important places for children’s experience and education about the wider world.

Obviously, you can’t just go to South Africa and see the animals in the wild,” says Chantal Kinsella – Ollie and Rosie’s mum.

Some people are against zoos because the animals are not in their natural habitat. But you get to see things that you wouldn’t normally get to see every day – you get to see how they’re looked after, they do talk shows, they feed the sea lions… it’s a place of learning for the children.”

As thousands of businesses across the UK were forced to shut their doors from 23rd March, helping to stem the spread of COVID-19, zoos and safari parks have been closed to the public since early spring. But following guidelines from Public Health England, places that operate outdoors have begun to reopen as they are seen as lower risk.

I am very grateful to the zoo industry for their cooperation and forbearance,” explained Boris Johnson during the Government’s daily briefing on Wednesday 10th June, “and am happy to confirm that they too can reopen from Monday (15th June), provided visitor numbers are managed and safeguards put in place.

That includes keeping indoor areas such as reptile houses closed and facilitating social distancing.”

But as the light at the end of the economic tunnel begins to shine, there are still concerns for the welfare of such beloved places of interest.

People take it for granted that the zoos are always going to be there,” explains Craig Strawfrord, Ollie and Rosie’s dad – who once had a closer than usual encounter with a giraffe when he was stationed in Kenya, training for Afghanistan.

People might think just because they’re opening, they’re magically going to get the money back. But businesses can still be trading by slowly going under, because of the debt and interest rates. So, every little bit we can give them helps.”

Originally the zoos weren’t opening so they weren’t getting any income whatsoever,” adds Chantal, “they are opening now – but there’s still a shortfall because the zoos are not going to be able to have as many guests as they normally would have.”

Twycross Zoo first opened in 1963 and welcomes over half a million visitors to see the 500 animals in their care – including the ‘the largest collection of monkeys and apes in the Western World.’

The reported costs of running the wildlife sanctuary are over £500,000 per month.

But to Ollie and Rosie Kinsella it is a place of magic and learning, where they can experience wonders of the world a short distance from home. And if it helps to keep Twycross Zoo open for birthdays to come, walking 5km around Pype Hayes Park is a small price to pay.

They tell you facts,” explains Ollie – who is now trying to stand like a flamingo alongside his sister Rosie, “like how cheetahs can run fast… Did you know there’s a neon fish, that glows in the dark? In the sea. But they live very deep, so you’d need to dig a really big hole to see them.

I’d like to see a giraffe, like the one that walked over Daddy when he was in the war… But If I saw a tiger I’d run… or I’d fight back.

Ollie and Rosie will be making their 5k sponsored walk round Pype Hayes Park on Saturday 27th June – aiming to raise £500 to help save Twycross Zoo. For more information, or to make a donation, visit www.totalgiving.co.uk/mypage/ollieandrosietosavethezoo

To find out more about Twycross Zoo, visit www.twycrosszoo.org

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NEWS: Hope and Healing at John Taylor, Erdington based hospice launches fundraising appeal to support grieving youngsters

Words by Diane Parkes / Pics courtesy of John Taylor Hospice Erdington

John Taylor Hospice in Erdington has launched the Hope and Healing Appeal – fundraising to support children across the West Midlands, who have lost loved ones during the coronavirus crisis.

The Hope and Healing Appeal aims to raise £10,000 to fund children’s counselling and art therapy groups at John Taylor Hospice – helping youngsters through one of the potentially toughest and loneliest times in their lives.

Donations to the Hope and Healing Appeal can be made online through a special Just Giving page, for more information visit www.justgiving.com/campaign/hopeandhealing

For those without access to the Internet, donations can also be made by texting the word ‘HEAL’ to 70331 for a £3 donation, or to 70191 for a £10 donation.

John Taylor Hospice is a charity, relying on public donations and fundraising to generate the £15,000 per day needed to run all its palliative and end of life care services. Founded in 1910, John Taylor Hospice is the oldest non-denominational hospice in the country – supporting over 600 individuals and families across the West Midlands.

The coronavirus pandemic has had a devastating impact on so many families and they will need support to heal from the grief this crisis has caused,” says Katie Mitchell, Head of Fundraising at John Taylor Hospice. “Your donation will mean so much to families and will support children to find the strength and confidence to open up, express their feelings and realise they are not alone.”

Fronting the fundraising appeal is Vicki Brennan, 50, from Kingstanding whose eight-year-old grandson Cruz took part in a pilot support group for children at John Taylor Hospice.

My beautiful daughter Siobhan was only 25 when she died of cervical cancer in June last year,” explained Vicki, who is now Cruz’s guardian. “When his mommy died he was so brave but he found it very difficult to talk about his feelings.

“The hospice nurses that cared for Siobhan told us about a new bereavement support group at John Taylor. Cruz looked forward to going every week as he felt reassured talking to other children who’d lost parents and grandparents and realised he wasn’t alone.

In art therapy groups he drew pictures of his mommy – such lovely, happy memories of the two of them shopping and playing together. After a few weeks of counselling and art therapy with the other children, we noticed that Cruz started to open up more, being able to express his emotions and ask more questions.

“The group has also given us strength as a family, the opportunity to grieve in our own ways and to reminisce about precious moments together that keep Siobhan’s beautiful memory alive.”

The support sessions that Cruz attended were a pilot for the Birmingham-based hospice – and now the Hope and Healing Appeal aims to raise funds so this vital service can be continued and offer a lifeline for more families like Vicki’s.

Vicki added: “For children especially, the loss of someone close can be overwhelming. But with the right support, children can find the strength to cope with feelings of sadness, guilt, insecurity and fear. If you are able to support this appeal we’d be incredibly grateful and your kind donation will help more children like Cruz to heal from their grief and have hope for happier times.”

John Taylor Hospice’s Hope and Healing Appeal

To make a donation to the Hope and Healing Appeal visit www.justgiving.com/campaign/hopeandhealing or text HEAL to 70331 to donate £3, or HEAL to 70191 to make a £10 donation.

To read more about John Taylor Hospice visit www.johntaylorhospice.org.uk

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